Rare Diseases

What are rare diseases?

99% of genetic conditions are classed as rare*. Often rare diseases are chronic and life-threatening.  

About

Rare diseases include rare cancers such as childhood cancers and some other well-known conditions, such as Cystic Fibrosis, Huntington’s disease, Battens Disease, Angelman Syndrome, and chromosomal disorders.  

How we can help children with rare diseases

Treatment options for rare diseases are vast. Outside of NHS prescribed medications, children can benefit from additional therapies, adaptations and equipment to help them achieve everything they possibly can.  

References: 

*Inferred from OMIM.org and orpha.net databases. Genetic conditions refer to single gene disorders and chromosomal abnormalities. 

https://www.raredisease.org.uk/what-is-a-rare-disease/ 

 

How Tree of Hope can help?

We provide families with the tools to help fundraise for anything needed to help support a child's condition. 

Contact our family support team on 01892 535 525

Fundraising with Tree of Hope

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We Claim Gift Aid

All campaigns are eligible for tax relief where donations can be eligible for 25% in gift aid, helping families to reach their targets quicker and efficiently.

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Marketing Support

We provide marketing, social media, branding & PR support to maximise your child's campaign reach and support potential.

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Registered Charity Status

We provide the assurance of registered charity status to help legitimise a family’s campaign, increasing fundraising success.

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1-2-1 Support

Our dedicated team of Family Support Officers provide practical support and guidance to all our families so you’re never on your own,

Our Impact

With over 30 years’ experience, we have helped thousands of families and have grown to meet increasing demand. Read our latest impact report to be inspired and find out more about our journey.

2,008

Children helped

£1.2 million

Raised in the last year

We are here to support you and your family